When you have, or your family member has, been given a diagnosis of a bleeding disorder, we will give you written information about this, and links to resources about the condition and available treatments.
Below are some resources you might find useful which we have curated for you.
Links are checked and updated every 12 months - some external sources might offer information not be completely relevant to patients in the UK or at Oxford Haemophilia and Thrombosis Centre.
Please contact your Haemophilia team if you have any questions or queries - contact us.
Patient information welcome pack
Wecome to the Adult Haemophilia Comprehensive Care Centre (pdf)
Haemophilia A/B
Haemophilia A
Haemophilia B
Transition with haemophilia
Mild / moderate haemophilia 
- search 'mild / moderate haemophilia'
Treatments
DDAVP (desmopressin) response test (pdf) - OUH
Inhibitors and their treatment
Bypassing products
Prophylaxis / self-infusion 
Self-infusion
Specific treatments
Emicizumab HEMLIBRA®
Von Willebrand Disease
Von Willebrand disease is also known as von Willebrand disorder.
Treatments
Voncento
Veyvondi / Vonvendi
DDAVP (desmopressin) response test (pdf)
Rare disorders
Factor V
Treatment
Factor VII
Treatment
Novoseven
Factor X
Treatment
Factor XI
Treatment
Factor XIII
Treatment
Factor I
Treatment
RiaSTAP
Factor II
Treatment
Platelet disorders
Treatment
DDAVP
DDAVP (desmopressin) response test (pdf)
Bernard Soulier Syndrome
Glanzmann's Thrombasthenia
Treatment
Novoseven
Other specific platelet disorders
ADP-P2Y12
Paris-Trousseau
GFI1B-related thrombocytopenia
Grey platelet syndrome
Hermansky Pudlak syndrome
MYH9
RUNX1
SLFN14-related thrombocytopenia
Wiskott Aldrich syndrome
Physical activity
Girls and women
Ankle, knee and elbow
Balance
Core
Bleeds
Women and girls with bleeding disorders
Information for carriers
Oxford University Hospitals
Information About Pregnancy for Haemophilia Carriers (pdf)
Babies with an Inherited Bleeding Disorder (pdf)
