Links
Lung conditions
Disability / carer support
Benefits
Personal Independence Payment (PIP)
People aged over 16 and under State Pension age with a long-term physical or mental health condition, who have difficulty doing certain everyday tasks, may be entitled to Personal Independence Payment.
Attendance Allowance
People of State Pension age with long-term illness or disability may be entitled to Attendance Allowance.
Pulmonary fibrosis and benefits
Action for Pulmonary Fibrosis has produced a short guide to social security benefits for people affected by pulmonary fibrosis:
Travel insurance
You may need to go to a specialist provider for travel insurance.
Mental wellbeing
TalkingSpace Plus
TalkingSpace Plus is a free, confidential NHS service for adults in Oxfordshire, to help people feeling stressed, anxious or low. You can self-refer online.
ReSPECT
In an emergency, healthcare professionals may have to make rapid decisions about your treatment, and you may not be well enough to discuss what is important to you.
ReSPECT (Recommended Summary Plan for Emergency Care and Treatment) empowers you to guide your medical team on what treatments you would or would not want to be considered for.
A care plan is created from discussions between you and healthcare professionals involved in your care. Your medical team will outline realistic medical treatments, and these will be considered alongside your preferences.
This plan can be reviewed at any time if your wishes change or if there is a change in your health.
ReSPECT - Summary Plan for Emergency Care and Treatment
Action for Pulmonary Fibrosis magazine
The Action for Pulmonary Fibrosis 'Insider' magazine is packed with free information to help you live well and manage your condition. It contains topics such as support, personal stories, fundraising, research and treatment.
Use the link below to register for the magazine (either as a hard copy or digital version).
